I have decided. Very rare words to escape my mouth.
I am switching targeted therapies! I am going to switch to
Entrectinib (aka rxdx-101) that is available at UCI with Dr. Ou. We’re feeling
quite confident in this drug and I expect smooth sailing. But! I have back ups
too. Dr. Ou has two other ROS-1 inhibitors that also get pass the BBB, so that’s
comforting (PF-3922 & one from Daiichi Sankyo<from Japan, may be more
promising than 3922, we shall see). For those of you late to the game, I am leaving crizotinib aka xalkori because although it was very effective at clearing my cancer (still clear from the neck down), it does not get into the brain and I had a pleasant little guy pop up on my last brain MRI. I could have done some form of radiation to take care of it, but I like the idea of covering everything by switching to Entrectinib.....And, fun perks, I probably won't experience bloating or heart rate drops on this new drug.
Dr. Ou is a fellow golden bear…roll on you bears…and is fantastic/ genius. If any of you ROS-1er’s out there (regardless of cancer type) are considering a drug switch, I’d be beyond happy to share the new info I gained from Dr. Ou on ROS-1 inhibitors.
Dr. Ou is a fellow golden bear…roll on you bears…and is fantastic/ genius. If any of you ROS-1er’s out there (regardless of cancer type) are considering a drug switch, I’d be beyond happy to share the new info I gained from Dr. Ou on ROS-1 inhibitors.
Since it is conveniently available 20 minutes from my house,
I don’t have an excuse to go to Denver…boo.
More updates: I am now 84% sure I am doing the full marathon
in July….I told you decisions are not my forte. I just applied for a job in
Palo Alto…fingies crossed. Kauai was AMAZE. ASCO in Chicago was CRAZE. And life
overall is pretty good. I’m feeling very detailed this morning.
Health wise I’m fairly pleased because I keep having options
pop up and options are good, options are very good.
K BYE.
Cory you are very brave, I am talking Xalkori, plz keep posting new medication experience. I am very scared, drug makes me feel horrible due to nausea, heart burn. I am diagnosed a month ago , feeling lost but you showed me courage, keep it up you are my strength.
ReplyDeleteYou are so sweet Sadia. Thank you. So far no big side effects on entrectinib. I'll keep you posted! The beginning is very dark/ scary but I promise it gets better! Hang in there.
DeleteAs a sign of gratitude for how my wife was saved from CANCER, i decided to reach out to those still suffering from this.
ReplyDeleteMy wife suffered cancer in the year 2013 and it was really tough and heartbreaking for me because she was my all and the symptoms were terrible, she always complain of abnormal vaginal bleeding, and she always have pain during sexual intercourse. . we tried various therapies prescribed by our neurologist but none could cure her. I searched for a cure and i saw a testimony by someone who was cured and so many other with similar body problem, and he left the contact of the doctor who had the cure to cancer . I never imagined cancer. has a natural cure not until i contacted him and he assured me my wife will be fine. I got the herbal medication he recommended and my wife used it and in one months time she was fully okay even up till this moment she is so full of life. cancer. has a cure and it is a herbal cure contact the doctor for more info on drwilliams098675@gmail.com on how to get the medication. Thanks for reading my testimony.